LATEST NEWS & PUBLICATIONS

Human Research Conference Points the Way Forward

Several hundred people attended yesterday's conference "Research with Human Participants: The National Debates" at the University of Minnesota, with hundreds more participating by webcast. Renowned scholars and policymakers discussed the complexities of obtaining informed consent, the nuances of conflicts of interest, and the ways those engaged in research can and should build a more robust infrastructure for clinical trials.

Unintended Consequences: Culture Wars Drove State Stem Cell Research Funding

When President George W. Bush restricted federal funding for embryonic stem cell research in 2001, he wasn't looking to expand state funding of this research, but that's exactly what happened. An article in Kaiser Health News recounts how, after the ban, several states started their own stem cell programs or offered economic incentives to local scientists and companies.

Consortium Research Award Applications Now Being Accepted

Each year, the Consortium awards funding to qualified University of Minnesota graduate and professional students for projects related to the societal implications of problems in health, environment, and the life sciences. The Request for Proposals (RFP) for summer 2016 and academic year 2016-17 is now available. Student organizations may apply for these grants, which total $35,000 with a maximum individual award of $7,000.

First Consensus Recommendations Published on Sharing Individuals’ Genomic Findings with Family

An NIH-funded, blue-ribbon project group has just published the first consensus recommendations on a question that has vexed researchers for serveral years: Should researchers share an individual study participant’s private results with family members who may share a genetic risk? A new 

Alexander Khoruts on Promising New Drug to Treat Deadly C. diff

A team at Stanford University has developed a new drug to fight deadly Clostridium difficile (C. difficile) infections. Each year, the superbug kills 29,000 Americans and makes 450,000 sick. Rather than destroying helpful bacteria along with C. difficile toxins, as antibiotics do, tests in mice show the new compound prevents damage to the inside of the intestine, thereby avoiding the diarrhea and sepsis that causes most fatalities.

WSJ Profiles One Family's DNA Sequencing Privacy Challenges

An article in today's Wall Street Journal describes one family's struggles regarding how much DNA information to share with each other. Identical twins Kathy Giusti and Karen Andrews have been diagnosed with two different types of cancer and hold divergent opinions, leading to tough questions about how much each family member wanted to share, wanted to know, and the privacy issues and sense of obligation the situation evokes.