One of the Consortium's primary goals is to produce original intellectual work on the societal implications of biomedicine and the life sciences and we have published widely in areas such as genetics, genomics, and nanomedicine. For example, in April 2012, Genetics in Medicine published a special issue and consensus article from the Consortium that offered the first recommendations on whether and how to discuss individual research results and incidental findings with people who contribute their specimens and data to biobanks and archived data sets.
Below, you can access and download the many symposia and articles generated by the grants we've been awarded.
Published symposia resulting from research
Journal of Law, Medicine & Ethics
March, 2018
Journal of Law, Medicine & Ethics
Fall, 2015
Minnesota Journal of Law, Science & Technology
Spring, 2012
Individual Articles and Publications
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Porter
KM
,
Kauffman
TL
,
Koenig
BA
,
Lewis
KL
,
Rehm
HL
,
Richards
CS
,
Strande
NT
,
Tabor
HK
,
Wolf
SM
,
Yang
Y
,
Amendola
LM
,
Azzariti
DR
,
Berg
JS
,
Bergstrom
K
,
Biesecker
LG
,
Biswas
,
Bowling
KM
,
Chung
WK
,
Clayton
EW
,
Conlin
LK
,
Cooper
GM
,
Dulik
MC
,
Garraway
LA
,
Ghazani
AA
,
Green
RC
,
Hiatt
SM
,
Jamal
SM
,
Jarvik
GP
,
Goddard
KAB
,
Wilfond
BS
. Approaches to Carrier Testing and Results Disclosure in Translational Genomics Research: The Clinical Sequencing Exploratory Research (CSER) Consortium Experience. Molecular Genetics & Genomic Medicine 2018;0:1-12.
Download PDF (932.77 KB)
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Evans
BJ
. Commentary: HIPAA’s Individual Right of Access to Genomic Data: Reconciling Safety and Civil Rights. The American Journal of Human Genetics 2018;102:05-10. Download PDF (190 KB)
- Evans BJ . Letter to the Editor: Response to Dreyfus and Sobel. The American Journal of Human Genetics 2018;103:166-168.
- Morgan TM . Genomic Screening: The Mutation and the Mustard Seed. Journal of Law, Medicine & Ethics 2018;46(2):541-546.
- Rothstein MA . GINA at Ten and the Future of Nondiscrimination Law. Hastings Center Report 2018;48(3):5-7.