One of the Consortium's primary goals is to produce original intellectual work on the societal implications of biomedicine and the life sciences and we have published widely in areas such as genetics, genomics, and nanomedicine. For example, in April 2012, Genetics in Medicine published a special issue and consensus article from the Consortium that offered the first recommendations on whether and how to discuss individual research results and incidental findings with people who contribute their specimens and data to biobanks and archived data sets.
Below, you can access and download the many symposia and articles generated by the grants we've been awarded.
Published symposia resulting from research
Journal of Law, Medicine & Ethics
March, 2018
Journal of Law, Medicine & Ethics
Fall, 2015
Minnesota Journal of Law, Science & Technology
Spring, 2012
Individual Articles and Publications
- Clayton
EW, Evans
BJ, Hazel
JW, Rothstein
MA. The Law of Genetic Privacy: Applications, Implications, and Limitations. Journal of Law and the Biosciences 2019;6:1-36.
Download PDF (532.78 KB) - Burke W, Clayton EW, Wolf SM, Berry SA, Evans BJ, Evans JP, Hall R, Korngiebel D, Laberge AM, LeRoy BS, McGuire AL. Improving Recommendations for Genomic Medicine: Building an Evolutionary Process from Clinical Practice Advisory Documents to Guidelines. Genetics in Medicine 2019;21(7):1-8.
- Yu JH, Appelbaum PS, Brothers KB, Joffe S, Kaufman TL, Koenig BA, Prince AE, Scollon S, Wolf SM, Bernhardt BA, Wilfond BS. Consent for Clinical Genome Sequencing: Considerations from the Clinical Sequencing Exploratory Research Consortium. PubMed 2019;16(4):325-333.
- Evans
BJ. Commentary: HIPAA’s Individual Right of Access to Genomic Data: Reconciling Safety and Civil Rights. American Journal of Human Genetics 2018;102:05-10. Download PDF (190 KB)
- Evans BJ. Letter to the Editor: Response to Dreyfus and Sobel. American Journal of Human Genetics 2018;103:166-168.