Publications

One of the Consortium's primary goals is to produce original intellectual work on the societal implications of biomedicine and the life sciences and we have published widely in areas such as genetics, genomics, and nanomedicine. For example, in April 2012, Genetics in Medicine published a special issue and consensus article from the Consortium that offered the first recommendations on whether and how to discuss individual research results and incidental findings with people who contribute their specimens and data to biobanks and archived data sets.

Below, you can access and download the many symposia and articles generated by the grants we've been awarded.

Published symposia resulting from research

Individual Articles and Publications

Clayton EW, McGuire AL. The Legal Risks of Returning Results of Genomics Research. Genetics in Medicine 2012;14(4):473-477. Download PDF (222.76 KB)
Bledsoe MJ, Grizzle WE, Clark BJ, Zeps N. Practical Implementation Issues and Challenges for Biobanks in the Return of Individual Research Results. Genetics in Medicine 2012;14(4):478-483. Download PDF (239.49 KB)
Beskow LM, Burke W, Fullerton SM, Sharp RR. Offering Aggregate Results to Participants in Genomic Research: Opportunities and Challenges. Genetics in Medicine 2012;14(4):490-496. Download PDF (268.67 KB)

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