Publications

One of the Consortium's primary goals is to produce original intellectual work on the societal implications of biomedicine and the life sciences and we have published widely in areas such as genetics, genomics, and nanomedicine. For example, in April 2012, Genetics in Medicine published a special issue and consensus article from the Consortium that offered the first recommendations on whether and how to discuss individual research results and incidental findings with people who contribute their specimens and data to biobanks and archived data sets.

Below, you can access and download the many symposia and articles generated by the grants we've been awarded.

Published symposia resulting from research

Individual Articles and Publications

Kronenthal C, Delaney SK, Christman MF. Broadening Research Consent in the Era of Genome-informed Medicine. Genetics in Medicine 2012;14(4):432-436. Download PDF (643.38 KB)
Wilfond BS, Diekema DS. Engaging Children in Genomics Research: Decoding the Meaning of Assent in Research. Genetics in Medicine 2012;14(4):437-443. Download PDF (244.72 KB)
Bollinger JM, Scott J, Dvoski R, Kaufman D. Public Preferences Regarding the Return of Individual Genetic Research Results: Findings From a Qualitative Focus Group Study. Genetics in Medicine 2012;14(4):451-457. Download PDF (238.49 KB)
Fisher R. A Closer Look Revisited: Are We Subjects or Are We Donors?. Genetics in Medicine 2012;14(4):458-460. Download PDF (202.21 KB)

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