Publications

One of the Consortium's primary goals is to produce original intellectual work on the societal implications of biomedicine and the life sciences and we have published widely in areas such as genetics, genomics, and nanomedicine. For example, in April 2012, Genetics in Medicine published a special issue and consensus article from the Consortium that offered the first recommendations on whether and how to discuss individual research results and incidental findings with people who contribute their specimens and data to biobanks and archived data sets.

Below, you can access and download the many symposia and articles generated by the grants we've been awarded.

Published symposia resulting from research

Individual Articles and Publications

Daly MB. A Family-Centered Model for Sharing Genetic Risk. Journal of Law, Medicine & Ethics 2015;43(3):545-551. Download PDF (167.6 KB)
Wilfond BS, Fernandez CV, Green RC. Disclosing Secondary Findings from Pediatric Sequencing to Families: Considering the “Benefit to Families”. Journal of Law, Medicine & Ethics 2015;43(3):552-558. Download PDF (135.91 KB)
Lewis MH, Goldenberg AJ. Return of Results from Research Using Newborn Screening Dried Blood Samples. Journal of Law, Medicine & Ethics 2015;43(13):559-568. Download PDF (187.39 KB)
Branum R, Wolf SM. International Policies on Sharing Genomic Research Results with Relatives: Approaches to Balancing Privacy with Access. Journal of Law, Medicine & Ethics 2015;43(3):576-593. Download PDF (428.95 KB)

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