Publications

One of the Consortium's primary goals is to produce original intellectual work on the societal implications of biomedicine and the life sciences and we have published widely in areas such as genetics, genomics, and nanomedicine. For example, in April 2012, Genetics in Medicine published a special issue and consensus article from the Consortium that offered the first recommendations on whether and how to discuss individual research results and incidental findings with people who contribute their specimens and data to biobanks and archived data sets.

Below, you can access and download the many symposia and articles generated by the grants we've been awarded.

Published symposia resulting from research

Individual Articles and Publications

Amendola LM, Horike-Pyne M, Trinidad SB, Fullerton SM, Evans BJ, Burke W, Jarvik GP. Patients’ Choices for Return of Exome Sequencing Results to Relatives in the Event of Their Death. Journal of Law, Medicine & Ethics 2015;43(3):476-485. Download PDF (1.63 MB)
Wolf SM, Burke W, Koenig BA. Mapping the Ethics of Translational Genomics: Situating Return of Results and Navigating the Research-Clinical Divide. Journal of Law, Medicine & Ethics 2015;43(3):486-501. Download PDF (1.29 MB)
Fernandez CV, O'Rourke PP, Beskow LM. Canadian Research Ethics Board Leadership Attitudes to the Return of Genetic Research Results to Individuals and Their Families. Journal of Law, Medicine & Ethics 2015;43(3):514-522. Download PDF (229.72 KB)
Wolf SM, Branum R, Koenig BA, Petersen GM, Berry SA, Beskow LM, Daly MB, Fernandez CV, Green RC, LeRoy BS, Lindor NM, O'Rourke PP, Radecki Breitkopf C, Rothstein MA, Van Ness B, Wilfond BS. Returning a Research Participant’s Genomic Results to Relatives: Analysis and Recommendations. Journal of Law, Medicine & Ethics 2015;43(3):523-528. Download PDF (146.16 KB)
Scollon S, Bergstrom K, McCullough LB, McGuire AL, Gutierrez S, Kerstein R, Parsons DW, Plon SE. Pediatric Cancer Genetics Research and an Evolving Preventive Ethics Approach for Return of Results after Death of the Subject. Journal of Law, Medicine & Ethics 2015;43(3):529-537. Download PDF (169.82 KB)
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