Publications

One of the Consortium's primary goals is to produce original intellectual work on the societal implications of biomedicine and the life sciences and we have published widely in areas such as genetics, genomics, and nanomedicine. For example, in April 2012, Genetics in Medicine published a special issue and consensus article from the Consortium that offered the first recommendations on whether and how to discuss individual research results and incidental findings with people who contribute their specimens and data to biobanks and archived data sets.

Below, you can access and download the many symposia and articles generated by the grants we've been awarded.

Published symposia resulting from research

Individual Articles and Publications

Beskow LM, O'Rourke PP. Return of Genetic Research Results to Participants and Families: IRB Perspectives and Roles. Journal of Law, Medicine & Ethics  2015;43(3):502-513. Download PDF (351.95 KB)
Garrison NA. Considerations for Returning Research Results to Culturally Diverse Participants and Families of Decedents. Journal of Law, Medicine & Ethics  2015;43(3):569-575. Download PDF (141.97 KB)
Wolf SM. The New World of Genomic Testing, Families and Privacy. Minnesota Medicine 2015;98(6):32-34. Download PDF (709.7 KB)
Wolf SM, Berlinger N, Jennings B. Forty Years of Work on End-of-Life Care — From Patients' Rights to Systemic Reform. New England Journal of Medicine 2015;372:678-682. Download PDF (104.47 KB)
Clayton EW, McCullough LB, Biesecker LG, Joffe S, Ross LF, Wolf SM, for the Clinical Sequencing Exploratory Research (CSER) Consortium Pediatrics Working Group. Addressing the Ethical Challenges in Genetic Testing and Sequencing of Children. American Journal of Bioethics 2014;14(3):3-9. Download PDF (76.34 KB)
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