Event Description
The Centers for Disease Control and Prevention (CDC) reports that approximately 15% of Americans have experienced Long COVID and that over 3,500 Americans have died from illnesses related to Long COVID. This webinar will bring together national experts to illuminate what is known about Long COVID, understand the burden on those experiencing it, discuss how the condition is (and is not) being treated, and consider the disability and discrimination implications and the expected economic fallout of Long COVID.
Panelists will discuss these pressing issues and respond to audience questions during this highly interactive webinar.
We are interested in hearing from you - send questions for the panel to [email protected] either before or during the lecture.
Follow us on twitter at @UMNconsortium and join the conversation by using #COVID19ethics.
This event is part of the "COVID Consequences: The Challenges of Long COVID" lecture series, co-sponsored by the Center for Infectious Disease Research and Policy (CIDRAP).
Speakers
Monica Verduzco-Gutierrez, MD
Dr. Monica Verduzco-Gutierrez is an accomplished academic Physiatrist and Professor and Chair of the Department of Rehabilitation Medicine at the Long School of Medicine at UT Health San Antonio. Her area of clinical expertise is the care of patients with traumatic brain injury, stroke rehabilitation, and interventional spasticity management. Most recently, she has developed a Post-COVID Recovery Clinic to help those who were diagnosed with COVID-19 and suffer from various physical, cognitive, and functional difficulties.
Hannah Davis, MPS
Hannah Davis is a co-founder of the Patient-Led Research Collaborative (PLRC), a team of Long Covid patients with research, policy, data, design, and medical backgrounds. PLRC did the first research on Long Covid in April 2020; their second paper on characterizing Long Covid is among the most viewed medical papers in the field. More recently, they launched a publication highlighting patient-generated hypotheses, and created scorecards for researchers to improve their patient engagement. Ms. Davis has a background in data analysis and machine learning, with a focus on tools for countering bias in machine learning datasets and on generative art & music.
Barbara Kornblau, JD, OTR/L, FAOTA
Barbara Kornblau is Director of Idaho State University’s Occupational Therapy Program and is a national disability rights advocate. She serves on the National Advisory Committee on Individuals with Disabilities and Disasters. In addition to being an occupational therapist and professor, Ms. Kornblau is an attorney, a certified case manager, a certified disability management specialist, and a person with a disability. A former Robert Wood Johnson Health Policy Fellow, she worked in the U.S. Senate on health and disability issues for Senators Harkin and Rockefeller. She is a past-President of the American Occupational Therapy Association.
Moderators
Michael K. Georgieff, MD
Michael K. Georgieff, MD, holds the position of the Martin Lenz Harrison Land Grant Chair in Pediatrics. He is Professor of Pediatrics and Developmental Psychology, Executive Vice Chair of the Department of Pediatrics, Director of the Center for Neurobehavioral Development, and Co-Director of the Masonic Institute for the Developing Brain at the University of Minnesota. Dr. Georgieff’s research focuses on fetal/neonatal nutrition and brain development, specifically on the effect of early life iron nutrition and neurocognitive function. He has been continuously funded in this field by the National Institutes of Health for 30 years and has published over 250 scientific articles. He advises the American Academy of Pediatrics, the National Institutes of Health and UNICEF on nutrition and early child development.
Susan M. Wolf, JD
Professor Susan M. Wolf is a Regents Professor; McKnight Presidential Professor of Law, Medicine & Public Policy; Faegre Drinker Professor of Law; and Professor of Medicine at the University of Minnesota. She is Chair of the University’s Consortium on Law and Values in Health, Environment & the Life Sciences. She is an elected member of the National Academy of Medicine (NAM) and a Fellow of the American Association for the Advancement of Science (AAAS).
Supplemental Information
Resources
- Bach K. Is ‘Long Covid’ Worsening the Labor Shortage? The Brookings Institution 2022.
- Burgoyne A, Ercanbrack M, Wiley C, Kornblau B. COVID-19’s Effect on Social Isolation and Loneliness as Experienced by Older Adults. American Journal of Occupational Therapy 2022;76(1):7610505133p1;doi:10.5014/ajot.2022.76S1-PO133.
- CDC, National Center for Health Statistics, Office of Communication. More Than 3,500 Americans Have Died from Long COVID-Related Illness in the First 30 Months of the Pandemic. National Center for Health Statistics 2022.
- Davis HE, McCorkell L, Vogel JM, et al. Long COVID: Major Findings, Mechanisms and Recommendations. Nature Reviews Microbiology 2023;21:133–146;doi:10.1038/s41579-022-00846-2.
- DeMars J, Brown DA, Angelidis I, Verduzco-Gutierrez M, et al. What is Safe Long COVID Rehabilitation? Journal of Occupational Rehabilitation 2022;doi:10.1007/s10926-022-10075-2.
- Denning LA, Hammers EF; National Academies of Sciences, Engineering, and Medicine. Long COVID: Examining Long-Term Health Effects of COVID-19 and Implications for the Social Security Administration: Proceedings of a Workshop. The National Academies Press 2022;doi:10.17226/26619.
- Gibbons G. RECOVER: What Clinical Research Comes Next for Helping People with Long COVID. NIH Director's Blog 2023.
- Ladyzhets B. People With Long Covid Face Barriers to Government Disability Benefits. Kaiser Health News 2022.
- Levine RL. Addressing the Long-term Effects of COVID-19. JAMA 2022;328(9):823–824;doi:10.1001/jama.2022.14089.
- National Center for Health Statistics. Household Pulse Survey, 2022–2023. Long COVID. U.S. Census Bureau 2023.
- National Institutes for Health. NIH RECOVER research identifies potential long COVID disparities. 2023.
- National Institutes for Health. Researchers Identify Four Long COVID Categories. 2023.
- Office of Congresswoman Ayanna Pressley. Targeting Resources for Equitable Access to Treatment for Long COVID (TREAT Long COVID) Act. 2023.
- Office of Senator Tim Kaine. Kaine, Markey & Duckworth Reintroduce Bill to Help Millions of Americans Living With Long COVID. 2023.
- Perlis RH, Lunz Trujillo K, Safarpour A, et al. Association of Post–COVID-19 Condition Symptoms and Employment Status. JAMA Network Open 2023;6(2):e2256152;doi:10.1001/jamanetworkopen.2022.56152.
- Puaschunder JM, Gelter. The Law, Economics, and Governance of Generation COVID-19 Long-Haul. 19 Indiana Health Law Review 47, Fordham Law Legal Studies Research Paper No. 4043926 2022.
- RECOVER: Researching COVID to Enhance Recovery. Home Page. 2023
- Reese JT, Blau H, Casiraghi E, Bergquist T, Loomba JJ, Callahan TJ, Laraway B, Antonescu C, Coleman B, Gargano M, Wilkins KJ, Cappelletti L, Fontana T, Ammar N, Antony B, Murali TM, Caufield JH, Karlebach G, McMurry JA, Williams A, Moffitt R, Banerjee J, Solomonides AE, Davis H, Kostka K, Valentini G, Sahner D, Chute CG, Madlock-Brown C, Haendel MA, Robinson PN; N3C Consortium; RECOVER Consortium. Generalisable Long COVID Subtypes: Findings From the NIH N3C and RECOVER Programmes. EBioMedicine 2023;87:104413;doi:10.1016/j.ebiom.2022.104413.
- Rolin S, Chakales A. Verduzco-Gutierrez M. Rehabilitation Strategies for Cognitive and Neuropsychiatric Manifestations of COVID-19. Current Physical Medicine and Rehabilitation Reports 2022;10:182–187;doi:10.1007/s40141-022-00352-9.
- U.S. Department of Health & Human Services. Health+ Long Covid Human-Centered Design Report. 2022.