Return of Genomic Research Results to a Participant’s Family, Including After Death

Fall 2015 cover of JLME
Published In

Journal of Law, Medicine & Ethics

Guest Editors
Susan M. Wolf; Barbara A. Koenig; Gloria M. Petersen
Issue
Year of Publication
Fall, 2015
Volume
43
Issue Number
3
Related Grant
Disclosing Genomic Incidental Findings in a Cancer Biobank: An ELSI Experiment

Symposium Articles

Displaying 1 - 5 of 14
Wolf SM. Introduction: Return of Research Results: What About the Family? Journal of Law, Medicine and Ethics 2015;43(3):437-439.
​Wolf SM, Branum R, Koenig BA, Petersen GM, Berry SA, Radecki Breitkopf C, Rothstein MA, Van Ness B, Wilfond BS. Returning a Research Participant’s Genomic Results to Relatives: Analysis and Recommendations Journal of Law, Medicine & Ethics 2015;43(3):440-463.
Radecki Breitkopf C, Petersen GM, Wolf SM, Chaffee KG, Robinson ME, Gordon DR, Lindor NM, Koenig BA. Preferences Regarding Return of Genomic Results to Relatives of Research Participants, Including after Participant Death Journal of Law, Medicine and Ethics 2015;43(3):464-475.
Amendola LM, Horike-Pyne M, Trinidad SB, Fullerton SM, Evans BJ, Burke W, Jarvik GP. Patients’ Choices for Return of Exome Sequencing Results to Relatives in the Event of Their Death Journal of Law, Medicine and Ethics 2015;43(3):476-485.
Wolf SM, Burke W, Koenig BA. Mapping the Ethics of Translational Genomics: Situating Return of Results and Navigating the Research-Clinical Divide Journal of Law, Medicine and Ethics 2015;43(3):486-501.