Publications

One of the Consortium's primary goals is to produce original intellectual work on the societal implications of biomedicine and the life sciences and we have published widely in areas such as genetics, genomics, and nanomedicine. For example, in April 2012, Genetics in Medicine published a special issue and consensus article from the Consortium that offered the first recommendations on whether and how to discuss individual research results and incidental findings with people who contribute their specimens and data to biobanks and archived data sets.

Below, you can access and download the many symposia and articles generated by the grants we've been awarded.

Published symposia resulting from research

Individual Articles and Publications

Nelsen KC, Andow DA, Banker MJ. Problem Formulation and Option Assessment (PFOA) Linking Governance and Environmental Risk Assessment for Technologies.  Journal of Law, Medicine & Ethics 2009;37(4):732-748. Download PDF (462.31 KB)
Wolf SM. Introduction: The Challenge of Incidental Findings. Journal of Law, Medicine & Ethics 2008;36(2):216-218. Download PDF (74.97 KB)
Wolf SM, Lawrenz FP, Nelson CA, Kahn JP, Cho MK, Clayton EW, Fletcher JG, Georgieff MK, Hammerschmidt D, Hudson K, Illes J, Kapur V, Keane MA, Koenig BA, Leroy BS, McFarland EG, Paradise J, Parker LS, Terry SF, Van Ness B, Wilfond BS. Managing Incidental Findings in Human Subjects Research: Analysis and Recommendations. Journal of Law, Medicine & Ethics 2008;36(2):219-248. Download PDF (415.08 KB)
Lawrenz F, Sobotka S. Empirical Analysis of Current Approaches to Incidental Findings. Journal of Law, Medicine & Ethics 2008;36(2):249-255. Download PDF (167.82 KB)
Richardson HS. Incidental Findings and Ancillary-Care Obligations. Journal of Law, Medicine & Ethics 2008;36(2):256-270. Download PDF (161.68 KB)

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