Publications

One of the Consortium's primary goals is to produce original intellectual work on the societal implications of biomedicine and the life sciences and we have published widely in areas such as genetics, genomics, and nanomedicine. For example, in April 2012, Genetics in Medicine published a special issue and consensus article from the Consortium that offered the first recommendations on whether and how to discuss individual research results and incidental findings with people who contribute their specimens and data to biobanks and archived data sets.

Below, you can access and download the many symposia and articles generated by the grants we've been awarded.

Published symposia resulting from research

Individual Articles and Publications

Kaufman DJ, Murphy-Bollinger J, Scott J, Hudson KL. Public Opinion about the Importance of Privacy in Biobank Research. American Journal of Human Genetics 2009;85(5):643-654. Download PDF (344.02 KB)
Paradise J, Wolf SM, Kuzma J, Ramachandran G, Kokkoli E. Symposium Introduction: The Challenge of Developing Oversight Approaches to Nanobiotechnology. Journal of Law, Medicine & Ethics 2009;37(4):543-545. Download PDF (76.53 KB)
Kuzma J, Najmaie P, Larson J. Evaluating Oversight Systems for Emerging Technologies: A Case Study of Genetically Engineered Organisms. Journal of Law, Medicine & Ethics 2009;37(4):546-586. Download PDF (5.06 MB)
Johnson R. Commentary: Emerging Technologies Oversight: Research, Regulation and Commercialization. Journal of Law, Medicine & Ethics 2009;37(4):587-593. Download PDF (106.73 KB)

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