Returning Incidental Findings and Research Results in Genomic Research with Biobanks & Archives

genetics

Published In

Genetics in Medicine

Guest Editors

Brian Van Ness

Issue

April, 2012

Issue Number

4

Volume

14

Symposium Articles

Introduction to the Special Issue: The Past, Present, and Future of the Debate over Return of Research Results and Incidental Findings

Return of Results: Not that Complicated?

Managing Incidental Findings and Research Results in Genomic Research Involving Biobanks and Archived Data Sets

Mapping the Inputs, Analyses, and Outputs of Biobank Research Systems to Identify Sources of Incidental Findings and Individual Research Results for Potential Return to Participants

Opportunities and Challenges for the Integration of Massively Parallel Genomic Sequencing into Clinical Practice: Lessons from the ClinSeq Project

Taxonomizing, Sizing, and Overcoming the Incidentalome

Intersection of Biobanking and Clinical Care: Should Discrepant Diagnoses and Pathological Findings be Returned to Research Participants?

Broadening Research Consent in the Era of Genome-informed Medicine

Engaging Children in Genomics Research: Decoding the Meaning of Assent in Research

An Empirical Examination of the Management of Return of Individual Research Results and Incidental Findings in Genomic Biobanks

Public Preferences Regarding the Return of Individual Genetic Research Results: Findings From a Qualitative Focus Group Study

A Closer Look Revisited: Are We Subjects or Are We Donors?

Taking Aims Seriously: Repository Research and Limits on the Duty to Return Individual Research Findings

Secondary Researchers’ Duties to Return Incidental Findings and Individual Research Results: A Partial-Entrustment Account

The Legal Risks of Returning Results of Genomics Research

Practical Implementation Issues and Challenges for Biobanks in the Return of Individual Research Results

International Normative Perspectives on the Return of Individual Results and Incidental Findings in Genomic Biobanks

Offering Aggregate Results to Participants in Genomic Research: Opportunities and Challenges