On Wednesday, Sept. 6 and Thursday, Sept. 7 the National Academies of Sciences, Engineering, and Medicine (NASEM) is presenting a workshop and webcast to examine issues related to the return of results to research participants. The committee hosting the workshop is chaired by frequent Consortium collaborator Dr. Jeffrey Botkin, MD, MPH (University of Utah; former chair of the Committee on Bioethics for the American Academy of Pediatrics; former member of the Secretary’s Advisory Committee on Human Research Protections, or SACRHP), and is comprised of 16 distinguished individuals from across the US. The workshop will allow the committee members and the public to hear from research participants and individuals with expertise in research and clinical laboratory practice and institutional policies, applicable federal and state laws and regulations, and communications. Among those presenting is Consortium Chair Susan M. Wolf, JD, who will be speaking about the laws and regulations governing the return of results. Prof. Wolf is one of three Principal Investigators on LawSeqSM, which is dedicated to mapping and shaping the law of genomics; her co-PIs are Ellen Wright Clayton, MD, JD (Vanderbilt University) and Frances Lawrenz, PhD (University of Minnesota).
Tuesday, September 5, 2017