Genetics & Disability Insurance: Ethics, Law & Policy

Summer 2007 cover of JLME
Sponsor
National Institutes of Health (NIH) and the National Human Genome Research Institute (NHGRI)
Award Amount
$413,912
Award Number
1-R01-HG02089
Project Dates
07/01/2000 to 12/31/2003
Project Links
National Working Group (Opens Google Doc)
Principal Investigator

Jeffrey Kahn, PhD (Center for Bioethics)

Co-Investigator(s)

Susan M. Wolf, JD (Consortium on Law and Values in Health, Environment & the Life Sciences) Dianne Bartels, PhD (Center for Bioethics)

Project Description

This grant was awarded to the Center for Bioethics and Joint Degree Program in Law, Health & the Life Sciences to complete a comprehensive investigation of the ethical, legal, and policy issues in the use of genetic information in private and public disability insurance and to recommend policies based on the findings.

Project outcomes 

Related Publications

Displaying 1 - 10 of 11
Kahn JP, Wolf SM. Introduction: Understanding the Role of Genetics in Disability Insurance Journal of Law, Medicine & Ethics 2007;35(2):05.
Wolf SM, Kahn JP, with input from the Working Group On Genetic Testing in Disability Insurance. Genetic Testing and the Future of Disability Insurance: Ethics, Law, and Policy Journal of Law, Medicine & Ethics 2007;35(2):6-32.
Dodge JH, Christianson DA. Genetic Testing and Disability Insurance: An Alternative Opinion Journal of Law, Medicine & Ethics 2007;35(2):33-35.
Dodge JH. Predictive Medical Information and Underwriting Journal of Law, Medicine & Ethics 2007;35(2): 36-39.
Christianson DJ. Disability Income Insurance: The Private Market and the Impact of Genetic Testing Journal of Law, Medicine & Ethics 2007;35(2): 40-46.
Silvers A. Predictive Genetic Testing: Congruence of Disability Insurers' Interests with the Public Interest Journal of Law, Medicine & Ethics 2007;35(2):52-58.
Rothstein MA. Genetic Exceptionalism and Legislative Pragmatism Journal of Law, Medicine & Ethics 2007;35(2): 59-65.
Kass N, Medley A. Genetic Screening and Disability Insurance: What Can We Learn From The Health Insurance Experience? Journal of Law, Medicine & Ethics 2007;35(2):66-73.
Sedo KJ. Workers' Compensation, Social Security Disability, SSI, and Genetic Testing Journal of Law, Medicine & Ethics 2007;35(2):74-79.