What's Next in Law, Health & the Life Sciences? Debating Openness, Access & Accountability

Video of Arthur Caplan 10th Anniversary Keynote (16 mins.) 

8:30am
Introduction: The History & Future of the Consortium and Joint Degree Program
Dean David Wippman, JD, Law School, University of Minnesota
Susan M. Wolf, JD, Consortium & Joint Degree Program, University of Minnesota
View Online

8:45am
What's Next in Genomic Research? Open Access to Data?
Panel moderated by Harry Orr, PhD, Director, Institute of Human Genetics & Institute for Translational Neuroscience View Online
Isaac Kohane, MD, PhD, Harvard Medical School View Online
Ellen Clayton, MD, JD, Vanderbilt University View Online
Alan Packer, PhD, Senior Editor, Nature Genetics
Susan M. Wolf, JD, University of Minnesota View Online
Question & Answer View Online

10:15am
Break

10:30am
What's Next in Neuroscience Research? New Uses in Law & National Security?
Panel moderated by Michael K. Georgieff, MD, Director, Center for Neurobehavioral Development
Judy Illes, PhD, University of British Columbia View Online
Jonathan Moreno, PhD, University of Pennsylvania View Online
Stephen J. Morse, PhD, JD, University of Pennsylvania Law School View Online
Apostolos P. Georgopoulos, MD, PhD, University of Minnesota View Online
Question & Answer View Online

Noon
Luncheon presentation: The Challenges of Global Health: What the Next Decade Will Bring
Moderated by Senior Vice President Frank Cerra, MD, Academic Health Center
Larry Gostin, JD, Director, O'Neill Center for National and Global Health Law, Georgetown Law/Johns Hopkins University View Online

1:15pm
What's Next in Environmental Research? New Accountability for Environmental Harms & Energy Use?
Panel moderated by Betsy Wattenberg, PhD, Environmental Health, University of Minnesota
Robert Bullard, PhD, Clark Atlanta University View Online
John Sheehan, MS, Scientific Program Coordinator for biofuels and the global environment, Institute on the Environment, University of Minnesota View Online
Deborah Swackhamer, PhD, Co-Director, Water Resources Center, University of Minnesota View Online
Question & Answer View Online

2:45pm
Break

3:00pm
Concurrent Sessions

Session A — What's Next for Centers Working on the Societal Implications of Biomedicine & the Life Sciences?
Moderated by Jeffrey P. Kahn, PhD, MPH, Director, Center for Bioethics
Larry Gostin, JD, Director, O'Neill Center for National and Global Health Law, Georgetown Law/Johns Hopkins University View Online
Arthur L. Caplan, PhD, Director, Center for Bioethics, University of Pennsylvania View Online
I. Glenn Cohen, JD, Assistant Professor and former Academic Fellow, Petrie-Flom Center for Health Policy, Biotechnology, and Bioethics View Online

Session B — New Voices: Top Papers
Moderated by Adjunct Associate Professor Jordan Paradise, JD, Associate Director of Research & Education, Consortium and Joint Degree Program and Faculty Editor-in-Chief, Minnesota Journal of Law, Science & Technology (MJLST)

• Restricting Access to Infertility Services: What is a Justified Limitation on Reproductive Freedom? by Crystal Liu, JD/MPH candidate, University of Minnesota View Online
• Signals, Warranties, Accountability and Healthcare Effectiveness by Adam Candeub, JD, Associate Professor, College of Law and Acting Director, Intellectual Property and Communications Law Program, Michigan State University View Online
• Has Non-U.S. Case Law Recognized a Legally Protected Autonomy Right? by Dr. Nili Karako-Eyal, JSD, Law Lecturer, The College of Management Academic Studies, Israel View Online
• Question & Answer View Online

4:15pm
What's Next in Science Oversight? New Strategies & Accountability?
Panel moderated by Stephen Kelley, JD, Director, Center for Science, Technology, and Public Policy
Cary Coglianese, JD, PhD, MPP, University of Pennsylvania View Online
R. Alta Charo, JD, University of Wisconsin Law School View Online
Gary Marchant, JD, MPP, PhD, Arizona State University View Online
Jennifer Kuzma, PhD, Humphrey Institute of Public Affairs, University of Minnesota View Online
Question & Answer View Online

Robert Bullard, PhD, is the Edmund Asa Ware Distinguished Professor of Sociology and Director of the Environmental Justice Resource Center at Clark Atlanta University. He is the author of fourteen books that address sustainable development, environmental racism, urban land use, industrial facility siting, community reinvestment, housing, transportation, climate justice, emergency response, smart growth, and regional equity. He has been described as the "father of environmental justice."

 

 

Arthur L. Caplan, PhD, is the Emanuel and Robert Hart Professor Bioethics, Chair of the Department of Medical Ethics and the Director of the Center for Bioethics at the University of Pennsylvania. He has served on a number of national and international committees including as the Chair National Cancer Institute Biobanking Ethics Working Group and the ethics committee of the American Society of Gene Therapy.

 

 

 

R. Alta Charo, JD, is the Warren P. Knowles Professor of Law & Bioethics, University of Wisconsin Law School. Charo serves on several expert advisory boards of organizations with an interest in stem cell research, including CuresNow, the Juvenile Diabetes Research Foundation, the International Society for Stem Cell Research and WiCell, as well as on the advisory board to the Wisconsin Stem Cell Research Program.

 

 

Ellen Clayton, MD, JD, is the Rosalind E. Franklin Professor of Genetics and Health Policy; Professor of Law; Professor of Pediatrics; and Co-Director, Center for Biomedical Ethics and Society at Vanderbilt University. She advises the National Human Genome Research Institute as well as other federal and international bodies on an array of topics ranging from children's health to the ethical conduct of research involving human subjects.

 

 

Cary Coglianese, JD, PhD, MPP, is the Associate Dean; Edward B. Shils Professor of Law; Professor of Political Science and Director of the Penn Program on Regulation at the University of Pennsylvania.

 

 

 

 

Glenn Cohen, JD, is an Assistant Professor and former Academic Fellow at the Petrie-Flom Center for Health Policy, Biotechnology, and Bioethics at Harvard Law School.

 

 

 

 

 

Holly Doremus, JD, PhD, is a Professor of Law at the University of California, Davis and a Member Scholar of the Center for Progressive Reform. She has written extensively about environmental and natural resources law and policy, with particular emphasis on biodiversity conservation and on the interplay of science and policy.

 

 

 

Apostolos P. Georgopoulos, MD, PhD, is a Professor of Neuroscience and Professor of Neurology at the University of Minnesota.

 

 

 

 

Lawrence O. Gostin, an internationally acclaimed scholar, is Associate Dean (Research and Academic Programs) and the Linda D. and Timothy J. O'Neill Professor of Global Health Law at the Georgetown University Law Center, where he directs the O'Neill Institute for National and Global Health Law. Dean Gostin is also Professor of Public Health at the Johns Hopkins University and Director of the Center for Law & the Public's Health at Johns Hopkins and Georgetown Universities-a Collaborating Center of the World Health Organization and the Centers for Disease Control and Prevention. Dean Gostin is Visiting Professor of Public Health (Faculty of Medical Sciences) and Research Fellow (Centre for Socio-Legal Studies) at Oxford University. He is the Health Law and Ethics Editor, Contributing Writer, and Columnist for the Journal of the American Medical Association. In 2007, the Director General of the World Health Organization appointed Dean Gostin to the International Health Regulations (IHR) Roster of Experts and the Expert Advisory Panel on Mental Health.

Judy Illes, PhD, is a Professor of Neurology and Canada Research Chair in Neuroethics, National Core for Neuroethics at the University of British Columbia. She helped build the research enterprise in imaging sciences in the Department of Radiology at Stanford University. She co-founded the Stanford Brain Research Center (now the Neuroscience Institute at Stanford), and served as its first Executive Director between 1998 and 2001.

 

 

Isaac (Zak) Kohane, MD, PhD, is the director of the Children's Hospital Informatics Program and is the Henderson Associate Professor of Pediatrics and Health Sciences and Technology at Harvard Medical School (HMS). He is also co-director of the HMS Center for Biomedical Informatics and Director of the HMS Countway Library of Medicine. Dr. Kohane leads multiple collaborations at Harvard Medical School and its hospital affiliates in the use of genomics and computer science to study cancer and the development of the brain (with emphasis on autism). He has developed several computer systems to allow multiple hospital systems to be used as "living laboratories" to study the genetic basis of disease while preserving patient privacy.

 

Jennifer Kuzma, PhD, is an Associate Professor in the Center for Science, Technology, and Public Policy at the Humphrey Institute of Public Affairs, University of Minnesota. Her current research interests include agrifood nanotechnology risk analysis and regulatory policy, and developing methods for integrated assessment of oversight models for bio and nanotechnology. She also participates on an interdisciplinary team studying full-cost accounting for renewable energy systems.

 

 

Gary Marchant, JD, MPP, PhD, is a Professor of Law and Executive Director & Faculty Fellow in the Center for the Study of Law, Science, & Technology, and Lincoln Professor of Emerging Technologies, Law & Ethics at Arizona State University.

 

 

 

 

Jonathan D. Moreno, PhD, is the David and Lyn Silfen University Professor and Professor of Medical Ethics and of History and Sociology of Science at Penn. He holds a joint appointment in HSS (School of Arts and Sciences) and in medical ethics in the School of Medicine. Moreno is also a Senior Fellow at the Center for American Progress in Washington, DC and a Visiting Professor of Biomedical Ethics at the University of Virginia. He is an elected member of the Institute of Medicine (IOM) of the National Academies and has been a member of numerous National Academies committees. He co-chaired the Committee on Guidelines for Human Embryonic Stem Cell Research. He has served as a senior staff member for two presidential advisory committees and has given invited testimony for both houses of congress. He is an advisor to the Howard Hughes Medical Institute, the Bill and Melinda Gates Foundation, and GlaxoSmithKline. He is also a Faculty Affiliate of the Kennedy Institute of Ethics at Georgetown University, and a Fellow of the Hastings Center and the New York Academy of Medicine.

Stephen J. Morse, PhD, JD, is the Ferdinand Wakeman Hubbell Professor of Law and Professor of Psychology and Law in Psychiatry at the University of Pennsylvania Law School. He is an expert in criminal and mental health law whose work emphasizes individual responsibility in criminal and civil law and the relation of the behavioral and neurosciences to responsibility and social control.

 

 

 

Alan Packer, PhD, is the Senior Editor at Nature Genetics. His graduate and post-doctoral research was in genetics.

 

 

 

 

E. Thomas Sullivan, JD, is the Senior Vice President for Academic Affairs and Provost at the University of Minnesota.

 

 

 

 

Deborah Swackhamer, PhD, is a Professor of Environmental Chemistry in the Division of Environmental health Sciences in the School of Public Health and Co-Director of the Water Resources Center at the University of Minnesota.

 

 

 

 

Susan M. Wolf, JD, is the McKnight Presidential Professor of Law, Medicine & Public Policy; Faegre & Benson Professor of Medicine; Faculty Member in the Center for Bioethics; Director of the Joint Degree Program in Law, Health & the Life Sciences; and Chair of the Consortium on Law and Values in Health, Environment & the Life Sciences at the University of Minnesota.

What's Next in Law, Health & the Life Sciences? Debating Openness, Access & Accountability

March 5, 2009 Gala Dinner

The University of Minnesota's Consortium on Law and Values in Health, Environment & the Life Sciences and Joint Degree Program in Law, Health & the Life Sciences celebrated their 10th Anniversary with a March 5, 2009 Gala Dinner at the Frederick R. Weisman Art Museum. The dinner celebrated the achievements of the Consortium and Joint Degree Program and preceded the March 6 conference, What's Next in Law, Health & the Life Sciences? Debating Openness, Access & Accountability.

University President Robert Bruininks delivered the welcome at the dinner, reflecting on the Consortium's decade of achievements. Consortium founding chair and Joint Degree Program founding director Professor Susan M. Wolf reflected on the Consortium's history.

Professor Arthur Caplan, PhD, Emanuel Robert Hart Professor of Bioethics; Chair, Department of Medical Ethics; and Director, Center for Bioethics, University of Pennsylvania, then delivered the dinner keynote, Conflict of Interest on Peer Review: What Ought to Be Done? Caplan praised the Consortium as a "leading program in the country on the societal implications of biomedicine & life sciences" and congratulated the Joint Degree Program for "producing the next generation of leaders at the interface of law, science, and medicine."

University of Minnesota President Robert H. Bruininks delivers the Welcome Address at the Gala Dinner.	JDP Advisory Board members Ruth Mickelsen, JD, MPH, and Margo Struthers, JD at the March 5 Gala Dinner
Prof. Arthur Caplan, PhD (University of Pennsylvania) –pictured here with Prof. Eugene Borgida, PhD (University of Minnesota)– delivered the keynote address at the Gala Dinner.	Prof. Michele Goodwin, JD, LLM (Law School) and Prof. Fionnuala D. Ní Aoláin, LLB, PhD (Law School) at the Gala Dinner
Joint Degree Program Alums Erin Furlong, JD, MPH and Kari Bomash, JD, MPH with JDP Advisory Board member Ryan Johnson, Esq. at the Gala Dinner	JDP Advisory Board member Martha Brand, JD, Prof. Alex Klass, JD, and Law School Dean David Wippman at the March 5 Gala Dinner
Regents Professor Patricia Simmons, MD, Prof. Barbara Koenig, PhD (Mayo Clinic/University of Minnesota), and Prof. Susan M. Wolf, JD, at the Gala Dinner

  

March 6, 2009 Conference

Audience members at the March 6, 2009 Joint Degree Program/Consortium 10th Anniversary Conference.

The conference explored what issues the next ten years will bring, exploring trends toward greater accountability to research participants, increased access to research data, and new forms of science oversight. Presentations from top national speakers addressed emerging issues in genomic, neuroscience, health care, biomedicine and the life sciences, environmental research, as well as science oversight. The conference also included a session on "Top Papers: New Voices" with presentations by the winners of a competitive call for papers.

Law School Dean David Wippman offered the Welcome Address. Speakers included: Prof. Isaac Kohane, MD, PHD (Harvard Medical School); Prof. Ellen Wright Clayton, MD, JD (Vanderbilt University); Prof. R. Alta Charo, JD (University of Wisconsin Law School); Prof. Robert Bullard, PhD (Clark Atlanta University); Prof. Stephen Morse, JD, PhD (University of Pennsylvania); Prof. Jonathan Moreno, PhD (University of Pennsylvania); Prof. Cary Coglianese, JD, PhD, MPP (University of Pennsylvania); and many more. Professor Larry Gostin, JD, Director, O'Neill Center for National and Global Health Law (Georgetown Law/Johns Hopkins University) presented the lunch keynote address on "The Challenges of Global Health: What the Next Decade Will Bring."

Prof. Isaac Kohane, MD, PhD (Harvard Medical School) speaks during the conference session on "What’s Next in Genomic Research? Open Access to Data."	Prof. Stephen Morse, JD, PhD (University of Pennsylvania) speaks at the 10th Anniversary Conference on "What’s Next in Neuroscience Research? New Uses in Law & National Security."
Prof. Lawrence Gostin, JD (Georgetown Law/Johns Hopkins University) delivers the Keynote Address on "The Challenges of Global Health: What the Next Decade Will Bring."	Prof. Judy Illes, PhD (University of British Colombia) presents on "What’s Next in Neuroscience Research? New Uses in Law & National Security" at the conference.
John Sheehan, MS (University of Minnesota), Prof. Robert Bullard, PhD (Clark Atlanta University), and Prof. Deborah Swackhamer, PhD (University of Minnesota) present a panel discussion on "What’s Next in Environmental Research? New Accountability for Environmental Harms & Energy Use" at the 10th Anniversary Conference.