The Limits of Personal Privacy: Biomedical Information in Public Health, Population Genomics, and Mass Disasters

April 3, 2003 - 8:30am to 5:00pm
Cowles Auditorium, Hubert H. Humphrey Center

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Dean Mark Becker, PhDUniversity of Minnesota School of Public Health
Prof. Susan M. Wolf, JD, University of Minnesota Law School; Medical School; Center for Bioethics; Director, Joint Degree Program in Law, Health & the Life Sciences; Chair, Consortium on Law and Values in Health, Environment & the Life Sciences

8:30am
Welcome
Hon. Patricia Simmons, MD, Regent of the University of Minnesota
Senior Vice President Frank Cerra, MD, University of Minnesota

9:00am
Privacy in America: Different Protections for Medicine, Public Health, and National Security?
Prof. George Annas, JD, MPH, Chair, Health Law, Boston University
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9:40am
Panel Discussion
Twila Brase, RN, Citizens' Council on Health Care, Saint Paul, MN
Prof. Steve Jacobsen, MD, PhD, Mayo Medical School
Prof. Timothy Church, PhD, MS, University of Minnesota School of Public Health
Don Gemberling, JD, Director, Information Policy Analysis Division, Minnesota Dept. of Administration
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9:55am
Q&A

10:30am
Break

10:45am
Privacy in Genetic Research and Testing
Prof. Kathy Hudson, PhD, Director, Genetics and Public Policy Center, Johns Hopkins University
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11:25am
Panel Discussion
Prof. Jeffrey Kahn, PhD, MPH, Director, Center for Bioethics, University of Minnesota
Michael Caldwell, MD, PhD, Director, Marshfield Clinic Research Foundation
Prof. Donna Arnett, MSPH, PhD, University of Minnesota School of Public Health
Prof. Bonnie LeRoy, MS, Director, Genetic Counseling Program, University of Minnesota
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11:40am
Q&A

12:15pm
Lunch in Humphrey Center Atrium

12:30pm
Introduction
Dean Alex Johnson, JD, University of Minnesota Law School

Protecting Privacy
Hon. Mike Hatch, JD, Minnesota Attorney General
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1:15pm
Privacy in the Face of Bioterrorism and Mass Disasters
Prof. Larry Gostin, JD, LLD, Professor of Law, Georgetown University; Professor of Public Health, Johns Hopkins University; Directory, Center for Law & the Public's Health
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1:55pm
Panel Discussion
Prof. Michael Osterholm, PhD, MPH, Director, Center for Infectious Disease Research & Policy, University of Minnesota
Prof. Jamie Grodsky, JD, University of Minnesota Law School
Prof. Oren Gross, LLM, SJD, University of Minnesota Law School
Hubert H. Humphrey, III, Esq., University of Minnesota School of Public Health
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2:10pm
Q&A

2:45pm
Break

3:00pm
Privacy, HIPAA, and Medical Databases
Janlori Goldman, JD, Director, Health Privacy Project, Washington DC
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3:40pm
Panel Discussion
Associate Dean John Finnegan, PhD, University of Minnesota School of Public Health
Kip Sullivan, JD, Minnesota Physician-Patient Alliance
Keith Dunder, JD, Counsel, University of Minnesota Academic Health Center
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3:55pm
Q&A

4:30pm
Wrap Up

5:00pm
Adjourn

Sponsored by the University of Minnesota's:

  • Consortium on Law and Values in Health, Environment & the Life Sciences
  • Joint Degree Program in Law, Health, & the Life Sciences
  • Academic Health Center
  • School of Public Health
  • Law School