Publications

One of the Consortium's primary goals is to produce original intellectual work on the societal implications of biomedicine and the life sciences and we have published widely in areas such as genetics, genomics, and nanomedicine. For example, in April 2012, Genetics in Medicine published a special issue and consensus article from the Consortium that offered the first recommendations on whether and how to discuss individual research results and incidental findings with people who contribute their specimens and data to biobanks and archived data sets.

Below, you can access and download the many symposia and articles generated by the grants we've been awarded.

Individual Articles and Publications

Greely HT. The Future of DTC Genomics and the Law. Journal of Law, Medicine & Ethics 2020;48(1):151-160. Download PDF (140.63 KB)
Wolf SM. Return of Results in Participant-Driven Research: Learning from Transformative Research Models. Journal of Law, Medicine & Ethics 2020;48(51):159-166. Download PDF (119.36 KB)
Clayton EW. What Should We Be Asking of Informed Consent?. Journal of Law, Medicine & Ethics 2020;48(1):185-187. Download PDF (79.38 KB)
Evans BJ, Javitt G, Hall R, Robertson M, Ossorio PN, Wolf SM, Morgan T, Clayton EW. How Can Law and Policy Advance Quality in Genomic Analysis and Interpretation for Clinical Care?. Journal of Law, Medicine & Ethics 2020;48(1):44-68. Download PDF (284.97 KB)
Wolf SM, Ossorio PN, Berry SA, Greely HT, McGuire AL, Penny MA, Terry SF. Integrating Rules for Genomic Research, Clinical Care, Public Health Screening and DTC Testing: Creating Translational Law for Translational Genomics. Journal of Law, Medicine & Ethics 2020;48(1):69-86. Download PDF (245.94 KB)

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