Publications

One of the Consortium's primary goals is to produce original intellectual work on the societal implications of biomedicine and the life sciences and we have published widely in areas such as genetics, genomics, and nanomedicine. For example, in April 2012, Genetics in Medicine published a special issue and consensus article from the Consortium that offered the first recommendations on whether and how to discuss individual research results and incidental findings with people who contribute their specimens and data to biobanks and archived data sets.

Below, you can access and download the many symposia and articles generated by the grants we've been awarded.

Published symposia resulting from research

Individual Articles and Publications

Porter KM, Kauffman TL, Koenig BA, Lewis KL, Rehm HL, Richards CS, Strande NT, Tabor HK, Wolf SM, Yang Y, Amendola LM, Azzariti DR, Berg JS. Approaches to carrier testing and results disclosure in translational genomics research: The clinical sequencing exploratory research consortium experience. Molecular Genetics & Genomic Medicine 2018;6(6):898-909. Download PDF (932.77 KB)
Clayton EW, Halverson CM, Sathe NA, Malin BA. A Systematic Literature Review of Individuals’ Perspectives on Privacy and Genetic Information in the United States. PLoS ONE 2018;13(10):e0204417. Download PDF (3.71 MB)
Wolf SM, Evans BJ. Defending the Return of Results and Data. Science 2018;362(6420):1255-1256. Download PDF (1.24 MB)
Wolf SM, Evans BJ. Return of Results and Data to Study Participants. Science 2018;362(6411):159-160. Download PDF (141.07 KB)
Wolf SM, Thyagarajan B, Fogel BL. The Need to Develop a Patient-centered Precision Medicine Model for Adults with Chronic Disability. Expert Review of Molecular Diagnostics 2017;17(5):415-418. Download PDF (45.42 KB)
All Publications

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