In an editorial in today's MinnPost, Bobbi Jacobsen, who has lived with amyotrophic lateral sclerosis (ALS) for 20 years, commemorates the passage of the Americans with Disabilities Act 26 years ago today by calling upon "the leaders of major disability organizations. . . to recognize that we want to be empowered in our end-of-life medical options, too." The article was written to raise awareness and support for Minnesota's Compassionate Care Act, which is modeled on an Oregon law that permits aid in dying but not assisted suicide. Jacobsen notes that the former only applies to terminally ill people: "Medical aid in dying applies to people who want more than anything to live, but a deadly disease is ending their lives." The bill was introduced in the Minnesota state legislature during the last session and was heard by the Senate Health Committee. It was withdrawn before a vote was taken, but is expected to be introduced again during the next session, which begins in January, 2017.
This grant was awarded to the Center for Bioethics and Joint Degree Program in Law, Health & the Life Sciences to complete a comprehensive investigation of the ethical, legal, and policy issues in the use of genetic information in private and public disability insurance and to recommend policies based on the findings.