Returning Incidental Findings and Research Results in Genomic Research with Biobanks & Archives

Genetics in Medicine April 2012
Journal

Genetics in Medicine

Guest editors: Susan M. Wolf, Brian Van Ness, Frances Lawrenz
Issue

April, 2012

Issue Number
4
Volume Number
14
Related Grants
Managing Incidental Findings and Research Results in Genomic Biobanks and Archives

Resulting Publications

Wolf SM. Introduction to the Special Issue: The Past, Present, and Future of the Debate over Return of Research Results and Incidental Findings. Genetics in Medicine 2012;14(4):355-357. PDF icon Download PDF (169.89 KB)
Evans J, Rothschild BR. Return of Results: Not that Complicated?. Genetics in Medicine 2012;14(4):358-360. PDF icon Download PDF (197.86 KB)
Wolf SM, Crock BN, Van Ness B, Lawrenz F, Kahn JP, Beskow LM, Cho MK, Christman MF, Green RC, Hall R, Judy J, Keane M, Knoppers B, Koenig BA, Kohane IS, LeRoy B, Maschke KJ, McGeveran W, Ossorio P, Parker LS, Petersen GM, Richardson HS, Scott JA, Terry SF, Wilfond BS, Wolf WA. Managing Incidental Findings and Research Results in Genomic Research Involving Biobanks and Archived Data Sets. Genetics in Medicine 2012;14(4):361-384. PDF icon Download PDF (515.12 KB)
Bemmels HR, Wolf SM, Van Ness B. Mapping the Inputs, Analyses, and Outputs of Biobank Research Systems to Identify Sources of Incidental Findings and Individual Research Results for Potential Return to Participants. Genetics in Medicine 2012;14(4):385-392. PDF icon Download PDF (522.7 KB)
Biesecker LG. Opportunities and Challenges for the Integration of Massively Parallel Genomic Sequencing into Clinical Practice: Lessons from the ClinSeq Project. Genetics in Medicine 2012;14(4):393-398. PDF icon Download PDF (200.93 KB)
Kohane IS, Hsing M, Kong SW. Taxonomizing, Sizing, and Overcoming the Incidentalome. Genetics in Medicine  2012;14(4):399-404. PDF icon Download PDF (782.77 KB)
Green RC, Berg JS, Berry GT, Biesecker LG, Dimmock DP, Evans JP, Grody WW, Hegde MR, Kalia S, Korf BR, Krantz I, McGuire AL, Miller DT, Murray MF, Nussbaum RL, Plon SE, Rehm HL, Jacob HJ. Exploring Concordance and Discordance for Return of Incidental Findings from Clinical Sequencing. Genetics in Medicine 2012;14(4):405-410. PDF icon Download PDF (221.68 KB)
Ferriere M, Van Ness B. Return of Individual Research Results and Incidental Findings in the Clinical Trials Cooperative Group Setting. Genetics in Medicine 2012;14(4):411-416. PDF icon Download PDF (247.94 KB)

Pages