Publications

One of the Consortium's primary goals is to produce original intellectual work on the societal implications of biomedicine and the life sciences and we have published widely in areas such as genetics, genomics, and nanomedicine. For example, in April 2012, Genetics in Medicine published a special issue and consensus article from the Consortium that offered the first recommendations on whether and how to discuss individual research results and incidental findings with people who contribute their specimens and data to biobanks and archived data sets.

Below, you can access and download the many symposia and articles generated by the grants we've been awarded.

Published symposia resulting from research

Individual Articles and Publications

Gordon DR, Radecki Breitkopf C, Robinson M, Petersen WO, Egginton JS, Chaffee KG, Peterson GM, Wolf SM, Koenig BA. Should Researchers Offer Results to Family Members of Cancer Biobank Participants? A Mixed-Methods Study of Proband and Family Preferences. American Journal of Bioethics Empirical Bioethics 2018;10(1):1-22. Download PDF (226.09 KB)
Evans BJ. Letter to the Editor: Response to Dreyfus and Sobel. American Journal of Human Genetics 2018;103:166-168. Download PDF (137.63 KB)
Evans BJ. Commentary: HIPAA’s Individual Right of Access to Genomic Data: Reconciling Safety and Civil Rights. American Journal of Human Genetics 2018;102(1):5-10. Download PDF (190 KB)
Evans BJ, Ossorio P. The Challenge of Regulating Clinical Decision Support Software after 21st Century Cures. American Journal of Law and Medicine 2018;44:237-251. Download PDF (507.21 KB)

Directions - Using Publications Search

Search Individual Articles and Publications

Select any filter and click on Apply to see results