Publications

One of the Consortium's primary goals is to produce original intellectual work on the societal implications of biomedicine and the life sciences and we have published widely in areas such as genetics, genomics, and nanomedicine. For example, in April 2012, Genetics in Medicine published a special issue and consensus article from the Consortium that offered the first recommendations on whether and how to discuss individual research results and incidental findings with people who contribute their specimens and data to biobanks and archived data sets.

Below, you can access and download the many symposia and articles generated by the grants we've been awarded.

Published symposia resulting from research

Individual Articles and Publications

Burke W, Brown Trinidad S, Schenck D. Can Precision Medicine Reduce the Burden of Diabetes?. Ethnicity & Disease 2019;29(3):669-674. Download PDF (168.48 KB)
Evans BE, Wolf SM. A Faustian Bargain that Imperils People’s Rights to See Their Own Personal Information. Florida Law Review 2019;71(5):1281-1345. Download PDF (593.67 KB)
Burke W, Clayton EW, Wolf SM, Berry SA, Evans BJ, Evans JP, Hall R, Korngiebel D, Laberge AM, LeRoy BS, McGuire AL. Improving Recommendations for Genomic Medicine: Building an Evolutionary Process from Clinical Practice Advisory Documents to Guidelines. Genetics in Medicine 2019;21(7):1-8. Download PDF (422.31 KB)
Clayton EW, Evans BJ, Hazel JW, Rothstein MA. The Law of Genetic Privacy: Applications, Implications, and Limitations. Journal of Law and the Biosciences 2019;6:1-36. Download PDF (532.78 KB)
Yu JH, Appelbaum PS, Brothers KB, Joffe S, Kaufman TL, Koenig BA, Prince AE, Scollon S, Wolf SM, Bernhardt BA, Wilfond BS. Consent for Clinical Genome Sequencing: Considerations from the Clinical Sequencing Exploratory Research Consortium. Personalized Medicine 2019;16(4):325-333. Download PDF (504.07 KB)

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