Publications

One of the Consortium's primary goals is to produce original intellectual work on the societal implications of biomedicine and the life sciences and we have published widely in areas such as genetics, genomics, and nanomedicine. For example, in April 2012, Genetics in Medicine published a special issue and consensus article from the Consortium that offered the first recommendations on whether and how to discuss individual research results and incidental findings with people who contribute their specimens and data to biobanks and archived data sets.

Below, you can access and download the many symposia and articles generated by the grants we've been awarded.

Published symposia resulting from research

Individual Articles and Publications

Berg JS, Amendola LM, Eng C, Van Allen E, Gray S, Wagle N, Rehm HL, DeChene ET, Dulik MC, Hisama FM, Burke W, Spinner NB, Garraway L, Green RC, Plon S, Evans JP, Jarvik GP. Processes and Preliminary Outputs for Identification of Actionable Genes as Incidental Findings in Genomic Sequence Data in the Clinical Sequencing Exploratory Research Consortium. Genetics in Medicine 2013;15(11):860-867. Download PDF (252.16 KB)
Berlinger N, Jennings B, Wolf SM. Guidelines on the Termination of Life-Sustaining Treatment and the Care of the Dying: Revised and Expanded Second Edition. New York: Oxford University Press 2013;:.
McGuire AL, Joffe S, Koenig B, Biesecker BB, McCullough LB, Blumenthal-Barby JS, Caulfield T, Terry SF, Green RC. Ethics and Genomic Incidental Findings: Point-Counterpoint. Science 2013;340(6136):1047-1048. Download PDF (116.64 KB)
Wolf SM, Annas GJ, Elias S. Patient Autonomy and Incidental Findings in Clinical Genomics: Point-Counterpoint. Science 2013;340(6136):1049-1050. Download PDF (120.72 KB)
Wolf SM. Introduction to the Special Issue: The Past, Present, and Future of the Debate over Return of Research Results and Incidental Findings. Genetics in Medicine 2012;14(4):355-357. Download PDF (169.89 KB)
All Publications

Directions - Using Publications Search

Search Individual Articles and Publications

Select any filter and click on Apply to see results