Publications

One of the Consortium's primary goals is to produce original intellectual work on the societal implications of biomedicine and the life sciences and we have published widely in areas such as genetics, genomics, and nanomedicine. For example, in April 2012, Genetics in Medicine published a special issue and consensus article from the Consortium that offered the first recommendations on whether and how to discuss individual research results and incidental findings with people who contribute their specimens and data to biobanks and archived data sets.

Below, you can access and download the many symposia and articles generated by the grants we've been awarded.

Published symposia resulting from research

Individual Articles and Publications

Evans J, Rothschild BR. Return of Results: Not that Complicated?. Genetics in Medicine 2012;14(4):358-360. Download PDF (197.86 KB)
Wolf SM, Crock BN, Van Ness B, Lawrenz F, Kahn JP, Beskow LM, Cho MK, Christman MF, Green RC, Hall R, Illes J, Keane M, Knoppers BM, Koenig BA, Kohane IS, Leroy B, Maschke KJ, McGeveran W, Ossorio P, Parker LS, Petersen GM, Richardson HS, Scott JA, Terry SF, Wilfond BS, Wolf WA. Managing Incidental Findings and Research Results in Genomic Research Involving Biobanks and Archived Data Sets. Genetics in Medicine 2012;14(4):361-384. Download PDF (515.12 KB)
Kohane IS, Hsing M, Kong SW. Taxonomizing, sizing, and overcoming the incidentalome. Genetics in Medicine 2012;14(4):399-404. Download PDF (782.77 KB)

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