President Obama Discusses Who Owns Genetic Data

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Friday, February 26, 2016

At a Precision Medicine Initiative Summit held at the White House yesterday, President Barack Obama reflected on progress made since he announced the effort in January, 2015, and proposed a series of measures to accelerate related medical advances. In his remarks, the President raised the question of who will own the data in the planned open repository of genomes from 1 million Americans, referring to a tension inherent in the project: "It requires, first of all, us understanding who owns the data," Obama said. "And I would like to think that if somebody does a test on me or my genes, that that's mine. But that's not always how we define these issues, right? So there’s some legal issues involved." Read Slate's article on the topic.