LawSeqSM to Clarify Consent, Standards, Liability in Genomic Medicine

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Wednesday, July 6, 2016

An article in GenomeWeb provides a comprehensive overview of the LawSeqSM project, a 3-year, $2 million grant recently awarded to Consortium chair Susan M. Wolf, JD, and two co-PIs, Ellen Wright Clayton, MD, JD (Vanderbilt) and Frances Lawrenz, PhD (University of Minnesota). The methodology will be a "combined approach involving empirical work, analytic research, and negotiation to reach consensus" within the national working group; the effort will also be informed by prior research in the field of genomic medicine by both Wolf and Clayton. The resulting guidelines will inform case law, fill gaps in current regulations and shape those developed in the future. Another important outcome will be "a public-facing website that simply describes in detail the current state of the law in relation to genomics and genome sequencing."