On March 8th and 9th, 2017, the Consortium will present two related conferences on frontier issues in research ethics. Building on the sold-out Research with Human Participants conference held in December, 2015, the March events will bring together renowned speakers from a variety of disciplines to address how informed consent ethics and policy have developed over the past century and what tools are needed to improve patient and research protections going forward. Discussion will include recent changes to the Common Rule governing research, including changes on informed consent and broad consent. On March 8, an all-day conference and simultaneous webcast will address The Future of Informed Consent in Research and Translational Medicine. The morning of March 9 will kick off the University of Minnesota's first-ever Research Ethics Day with a half-day conference and webcast on The Challenges of Informed Consent. Research Ethics Day concludes in the afternoon with trainings and workshops designed to provide concrete, actionable and hands-on approaches to the everyday challenges of properly conducting research with human participants. To learn more and register, visit our conference website.
This grant provides funds for the Patient-Centered Network of Learning Health Systems (LHSNet) to participate in PCORnet, a unique collaborative designed to link researchers, patient communities, clinicians, and health systems in productive research partnerships that leverage the power of large volumes of health data maintained by the partner networks. LHSNet includes partners across six states and nine academic medical centers, healthcare systems, public health departments and private health plans touching approximately 10 million individual lives, including patients in underserved and rural areas.