Background articles and websites that may be useful include:
- Amendola LM, Berg JS, Horowitz CR, et al. The Clinical Sequencing Evidence-Generating Research Consortium: Integrating Genomic Sequencing in Diverse and Medically Underserved Populations. American Journal of Human Genetics 2018;103:319-327.
- Bentley AR, Callier S, Rotimi CN. Diversity and Inclusion in Genomic Research: Why the Uneven Progress? Journal of Community Genetics 2017;8(4):255-266.
- Bonham VL, Green ED, Pérez-Stable EJ. Examining How Race, Ethnicity, and Ancestry Data Are Used in Biomedical Research. JAMA 2018;320(15):1533–1534.
- Hindorff LA, Bonham VL, Brody LC, et al. Prioritizing Diversity in Human Genomics Research. Nature 2018;19;175-185.
- Hindorff LA, Bonham VL, Ohno-Machado L. Enhancing Diversity to Reduce Health Information Disparities and Build an Evidence Base for Genomic Medicine. Personalized Medicine 2018;15(5):403-412.
- Joosten YA, Israel TL, Williams NA, et al. Community Engagement Studios: A Structured Approach to Obtaining Meaningful Input from Stakeholders to Inform Research. Academic Medicine 2015;90(12):1646-1650.
- Landry LG, Ali N, Williams DR, et al. Lack of Diversity in Genomic Databases is a Barrier to Translating Precision Medicine Research into Practice. Health Affairs 2018;37(5):780-785.
- Manrai AK, Funke BH, Rehm HL, et al. Genetic Misdiagnoses and the Potential for Health Disparities. New England Journal of Medicine 2016;375:655-665.
- Matthew DB. Just Medicine: A Cure for Racial Inequality in American Health Care. New York: NYU Press 2015.
- National Academies of Science, Engineering, and Medicine: Understanding Disparities in Access to Genomic Medicine: Proceedings of a Workshop. Washington, DC: National Academies Press, 2018.
- You can view a webcast of the Workshop, which was held on June 27, 2018, here.
- National Institutes of Health: All of Us Research Program
- Popejoy AB, Fullerton SM. Genomics is Failing on Diversity. Nature 2016;538:161-164.
- Sabatello M, Callier S, Garrison NA, Cohn EG. Trust, Precision Medicine Research, and Equitable Participation of Underserved Populations. American Journal of Bioethics 2018;18(4):34-36.
- Smedley BD, Stith AY, Nelson AR, eds. Unequal Treatment: Confronting Racial and Ethnic Disparities in Health Care. Washington, DC: National Academies Press, 2003.
- Wagner JK. DNA, Racial Disparities, and Biases in Criminal Justice: Searching for Solutions. Albany Law Journal of Science and Technology 2017;27(2):95-138.
- Watson SD. Lessons from Ferguson and Beyond: Bias, Health, and Justice. Minnesota Journal of Law, Science & Technology 2017;18(1):111-141.
- West KM, Blacksher E, Burke W. Genomics, Health Disparities, and Missed Opportunities for the Nation's Research Agenda. JAMA 2017;317(18)1831-1832.
- Williams JR, Yeh VM, Bruce MA, et al. Precision Medicine: Familiarity, Perceived Health Drivers, and Genetic Testing Considerations Across Health Literacy Levels in a Diverse Sample. Journal of Genetic Counseling 2018;1-10.